Wednesday, July 3, 2013

Autism (2) (April 2008)

From April 2, 2008:

After the birth of my second child, I went back to school. The challenges of being a parent with a child who was in the hospital almost as much as she was in school, led me to nursing school. I studied early in the morning before my kids were up, tended to my kids during the day, and went to school at nights. It was hard, but I found a love for medical science and biochemistry that I never dreamed I’d have in my pre-college days.

My third child came along, and then my fourth. That’s when I went from being the most organized person on the planet to a complete scatterbrain. Making lists went from being an informal obligation to an absolutely imperative necessity!

That fourth child was something new for me even before she was born. In the womb, she never stopped moving. Rest was difficult to come by because she was most active at night, and a busy mom doesn’t have a lot of down-time during the day. I was just as ecstatic when she made her debut into the world as with my other children, and this one seemed especially appropriate having made her grand entrance on Mother’s Day.

From the beginning, this child was different. The first thing I noticed was the lack of eye-contact. She also always had to be moving—if I held her hand, her feet would move. If I held her foot, her hands would move. Moms tend to brush these things off because somehow kids all seem to even out, sooner or later. By the time she was nine-months old, however, I knew something was at least wrong with her eyes, and this was confirmed by a specialist who within minutes determined that she had Duane’s Syndrome. Because it seemed only to affect her eyes (her vision is fine, but her left eye can not move outward), we dismissed it as a fact and went on with our daily lives.

But to me, things didn’t seem very "normal" with this child. She still refused most eye-contact, and often seemed to completely ignore people speaking to her. It was as if she was in her own little world. I would often have to walk up to her, place my hands on her shoulders, look directly into her face and speak to her. She seemed obsessed about certain things, such as with pop-up toys. If one of the other kids was playing with the toy and it was “popped up” she would immediately come from whatever room she was in and fiercely pop it down, and then leave without any explanation-- as though no explanation was needed. We were amused, but not really concerned. When a sibling would set up dolls to play with, this child would come running and knock them all down, every single time, and without explanation.

We had a rocking horse at one time, the kind with springs so it would be bouncy as it rocked. This little girl would ride it so fiercely and violently that we became concerned that she was going to seriously hurt herself and so we got rid of it. This was another red flag for me. Fear did not seem to be part of her genetic makeup. 


Remorse was also lacking. For example, for a short while she became a biter, and if a sibling upset her, she would bite them, and bite viciously hard! I realize a lot of small children are biters, but when she did this and was scolded for it, there was absolutely no remorse. Most children when they know they have hurt someone else, or when they are in trouble, will cry. This child never did. It was if it meant nothing to her that someone else was hurt and it meant nothing that she had been scolded. It didn’t register at all: no emotion whatsoever, not even anger. I tried to express my concerns to my husband, but it didn’t register with him, either. I was just making a big deal out of nothing.

To be Continued...

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